Conference Handouts

Click here to view handouts from 2010 - 2013 conferences. (Under agenda, then archives)

Click here to view past conference highlights.

Presented at the 19th Annual Research Conference

The Role, Impact and Effectiveness of Family Organizations in Developing Family Voice in Systems of Care

Download Handouts: 700kb pdf

Session Number: 57 Room: Salon G

Presentation Type: symposium

Chair: Katherine J. Lazear Discussant: Lisa Conlan

Synopsis: This symposium is built on the theoretical framework that there are certain system implementation factors which, when put into practice within communities, contribute to establishing well-functioning systems of care for children with serious emotional disorders and their families. The four papers presented in this symposium examine how one of these factors - a strong family voice - contributes to the implementation of effective systems of care. The focus of each paper is on family voice and system partnership as it is represented by family-run organizations.

Date: Friday, February 24, 2006

Session Time: 3:45 PM - 4:45 PM

Presentation Time: 3:45 PM - 4:45 PM

Bringing the Family Voice to Practice Improvement by Pairing "Professionals" with "Parents" to Interview Families Receiving Services through the Child and Team Process

Download Handouts: 62kb pdf

Presenting: Susan Hickcox

All Authors for this paper: Susan Hickcox; Jane Kallal; Ginny Wood

Presentation Type: element of symposium

Synopsis: In Maricopa County, Arizona, a Managed Care Organization contracts with a family-run organization, the Family Involvement Center (FIC), to ensure the County's mental health system is family-driven. This paper describes how family members are changing practice from provider-driven to family-driven in the development and implementation of quality assurance processes and its impact on service provision and outcomes. The following areas are discussed: the step-by-step process of how state and county policy makers, psychiatrists, direct care providers, managed care employees, parents and consultants reviewed and met with families utilizing the child and team process; development of the family member workforce; and, the collaborative decision-making process to implement the team approach to conducting quality assessments of the child and team process.

Using Family Perceptions to Guide System of Care Development

Download Handouts: 2.7mb pdf

Presenting: Conni Wells

All Authors for this paper: Conni Wells

Presentation Type: element of symposium

Synopsis: This paper summarizes data collected on encounters with families over a period of several years and describes how captured data have assisted organizations, program, resource and policy development to ensure that efforts and information is built upon the voice and needs of families, as THEY perceive them. Strategic planning that responds to the perceptions of families has enabled the Florida Institute for Family Involvement/Federation of Families for Children's Mental Health to guide policymakers to better understand the real needs of families. It has also assisted in identifying and developing targeted information, resources, and training to enhance the capacity of families and providers to navigate the system of care.

What the Literature Says about Family-Run Organizations and Lessons Learned from the Field: Family-Run Organizations within Systems of Care in North Carolina

Download Handouts: 223kb pdf

Presenting: Laura Weber

All Authors for this paper: Laura Weber

Presentation Type: element of symposium

Synopsis: The national movement for family involvement and partnership in mental health and other disciplines has led to an increasing number of family-led organizations. Although the movement has grown significantly over the past 20 years, there is a dearth of literature that details the journey of developing, running and sustaining family-led organizations. This paper focuses on a review of literature surrounding family-run organizations and details hands on learning regarding the necessary components that have developed as a result of the implementation of the system of care model and principles.

Findings from the National Survey of Family Organizations

We're sorry, handouts are not available for this presentation.

Presenting: Rene' Anderson; Roxann McNeish

All Authors for this paper: Rene' Anderson; Roxann McNeish; Katherine Lazear; Mary Evans

Presentation Type: element of symposium

Synopsis: This paper will present findings from the National Survey of Family Organizations, Phase One of the Family Voice Study at the Reseach and Training Center for Children's Mental Health. The purpose of the study is to increase our understanding of how strong family voice, as represented through family organizations, contributes to the development of effective systems of care and other child serving systems. The survey was sent to approximately 180 family organizations across the country. Key informants include family organization directors, family members, and partner organizations. Findings include how important and how effective family-run organizations are to implementing effective systems of care and to what extend family organizations are involved and supported as partners in implementation of the system of care.